You’ve probably heard the adage about developing willpower… all the stuff about it being quite easy; and that just like other muscles – our faculties can increase in strength.
All we have to do is practice.
Peak levels (of restraint) include the ability to refuse the ever-present office biscuits, and sticking to the strictest of gym regimes!
It’s the same for patience I think.
Things don’t happen very fast in the brain tumour game – I’ve talked before about all the waiting.
You’ll wait in clinics, for appointments; and for referrals and results.
Every trick in the book
In these pages, I’ve shared lot’s about my rehabilitation. It remains ongoing – and as such, we are trying all we can: including hydrotherapy.
The waiting list operates on a one in one out basis and as a result, I’ve been standing by since just after Christmas.
It’s safe to say that I was excited about the first session.
Up at the crack of dawn shaving my legs and applying waterproof mascara (side note: isn’t it always such a bitch to get off?!).
I put my (new) sensible swimsuit on under my clothes – feeling safe in the knowledge that I’d be well supported!!
And then, when I arrived… it was cancelled.
Something was wrong with the chlorine levels in the pool.
There’s always next week I said – not to worry.
The following week though, there weren’t enough evacuation marshals in the vicinity.
Safety first – I suppose you can’t argue with that.
Dipping my toes in
I’m wondering if it will be third time lucky? I hope so.
I won’t be quite as committed on the leg shaving front, but I *really* want to get started.
The team have been apologetic, but after all, it would be unfair to blame them or the hospital.
The problems are much wider. It’s the whole system.
It’s about recruitment and staffing – frequent reorganisation, and being a patient in the community.
In the meantime, thankfully, we’ve found other stuff to do – and I’m up and running with an FES device.
If you’re not familiar with FES (and why would you be!) – here’s how the manufacturer describes their stimulator:
“Our Odstock Dropped Foot Stimulator (ODFS®) sends signals to the self-adhesive electrodes that are placed on the skin over the nerves.
“The stimulator creates small electrical pulses. This causes the muscles in your leg to contract and moves your joints.”
“A small footswitch in your shoe times the stimulation to your walking.”
I’ve been waiting some time for this baby too – there’s only one in the department, and naturally, it’s in high demand.
It comes complete with dangling wires and an 80s style clip on control box (shudder).
But hey, at least we’re in business.
The worst thing is feeling as though you might be standing completely still.