Dress – Next ‘meeting a celebrity’ neck rash all my own (lols).
Here it is – a whistle-stop tour of the last week. In this *new* style post, I’m sharing a roundup of what I’ve been up to. Because it’s that interesting. Seriously.
We battled train cancellations, snow and wore completely the wrong shoes – subsequently arriving a little late at the Brain Tumour Research offices, where we’d been invited to launch Wear A Hat Day 2018.
Brushing away the obligatory early-morning-train-journey croissant crumbs, and fashioning our favourite hats, we were soon chatting to Caprice, and posing for a few snaps. She was lovely! Not only down to earth and personable, but also genuinely interested in the stories of others.
This, coupled with meeting the mayor, pretty much made my week.
I (finally) got to put important names to faces, and the talks were interactive and engaging.
Hearing from Dr Kieran Breen was a particular highlight – the recent announcement of increased funding, along with several ongoing research projects, suggests that there may well be new evidence-based treatment options in the relatively near future. Here’s hoping.
As it happens, I’m writing this on mother’s day – and since the event, I’ve thought often of the stories I heard, and have been struck by the unimaginable prospect of losing a parent or child to a brain tumour, and the heart-wrenching possibility of knowing you will leave your children behind.
Regular readers will be aware that I am ‘childless’ (I’m told that’s the new *rather unfortunate* term) – and whether I’ll have children of my own depends on many factors – impossible to predict. Fortunately, it’s not something I have to worry about now (but sadly the same cannot be said for my parents).
Other good stuff
We celebrated our first wedding anniversary – in style, at the spectacularly grand, (The) Ned.
Not too shabby.
You’ll be reading this on my shiny new website – which bar handing over the login details for my old site (and asking a lot of questions), required little input from me – B2WP did all the hard work (for free!). I’m still getting to grips with WordPress – but in the meantime, I’d love to know what you think.
The rest of it
- One new set of Shellac nails and one life-changing shampoo purchase (whoop!).
- One seizure, in a restaurant, and an early train home due to standard post-seizure loveliness.
- One Brain Tumour Support group meeting cancelled (snow problems).
- One irritating cold, trying its hardest, but (up to now) failing to fully take hold.
- One missed physio session due to major tiredness.
- An out-of-the-blue phone call to tell me that my brilliant, sweet, caring oncologist will be unable to see me for the next few months (I’ll be assigned to someone else) – a day of blubbering ensued (side-note – starting again just doesn’t feel fun, but I have now managed to string together a few pros).
- One steroid injection in my left knee, as a first try to relieve pain from the meniscal tear.
- One smear test booked (ladies, do not delay!), and one dossette filled.
- One assessment with PARS and subsequent referral to strength and balance classes in the community – at…wait for it…£1 a session!!
- Eight Instagrams and three interesting emails.
- One electrician blatantly ignoring my calls.
That’s it, in a (hopefully interesting) nutshell.